CRN Monthly Update for May 2014

In this issue:

Message from the Coordinating Center

Greetings from downtown Oakland and the CRN Coordinating Center! We have had an eventful month of April, and look forward to more key activities in the near future. The month started off like a lion, as one might say, with the CRN holding its in-person Steering Committee meeting in conjunction with the Health Care Systems Research Network Annual Meeting in Phoenix, AZ. Along with covering various administrative items, we had the honor of being visited by three representatives from PCORI who are well known to the CRN: Martin Brown, Steven Clauser, and Sarah Greene. Among other topics, they talked about the importance of incorporating true patient or stakeholder engagement into PCORI applications and funded activities - and how this is, for many researchers, a real shift in thinking about the conduct of research. In a separate meeting, we engaged in a frank and open discussion about the CRN strategic priorities, its progress to date, and vision to guide future activities. The thoughts and ideas that grew out of these discussions and other activities will help to guide the CRN in its activities.

It was gratifying to see prominent participation by CRN Scholars at the HCSRN Annual Meeting. Two of the Scholars, Mateo Banegas and Hazel Nichols, were recognized for their outstanding work through presentations at a plenary session. Several of the other Scholars presented at other sessions and also co-chaired breakout sessions at the meeting. Jessica Chubak, one of our Informatics Core leads, presented the CRN's approach to QA activities. It is our hope that these and other activities would be coordinated with other HCSRN-based networks, such as the Mental Health Research Network, the Kaiser Permanente Center for Safety and Effectiveness Research, and PCORI-supported Clinical Data Research Networks such as PORTAL.

In other activity, the CRN was represented again at the AACR Annual Meeting in San Diego, with an AACR-sponsored symposium on "Use of Electronic Medical Records in Cancer Research" organized by CRN leadership. Participants included Rebecca Hubbard of Group Health and Larry Kushi.

Looking forward, the CRN Progress Report to the NCI is due on July 1. Institutions and individuals playing key roles in the CRN will be contacted in the near future to request input and to provide administrative and budgetary information for the Progress Report. Over the next several weeks, we will also be receiving and reviewing Pilot Projects with decisions on funding expected by the end of June. We hope that many CRN Steering Committee members and other research colleagues will be willing to participate in the review process.

-Larry, Heather & Melissa

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Henry Ford's PCOR Center

Henry Ford Health SystemExternal Web Site Policy has recently been awarded a Patient Centered Outcomes Research (PCOR) Center grant from AHRQ. With the general overall objective of reducing health disparities among diverse populations, one focus of the new Center will be on training experienced and new investigators in the latest approaches in PCOR and Comparative Effectiveness methods. The Center will emphasize patient-centeredness, methodology, information technology, and dissemination and implementation through the establishment of Cores in each of these areas. Dr. Christine Cole Johnson, the HFHS/HAP CRN Site PI, is the PI of the new Center. Dr. Mei Lu, a biostatistician who leads the data coordinating center of the HCSRN CheCS project (longitudinal study of chronic hepatitis B and C infection) is the Associate Director. Drs. Gwen Alexander and Lois Lamerato, long time CRN investigators, are leading Cores. The first three projects are all related to PCOR studies focused on patients with obesity.

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Recent High Impact Papers

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Communication & Dissemination Teleconference

Thursday May 22, 1:00-2:00pm PT/4:00-5:00pm ET

Patti Ganz: "New Directions in Cancer Care Delivery Research: Implications of the 2013 IOM Report"

This presentation will begin with a brief overview of highlights from the 2013 IOM Report "Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis". Dr. Ganz will then describe research priorities and possible projects suggested by the report. Open discussion will follow, with the specific aim of identifying a short list of project ideas of interest to CRN investigators.

Call-in number: 888-858-2133
Access code: 6853873

Contact us for more information.

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Scientific Working Group Updates

Communication & Dissemination

On April 2, the C&D SWG hosted a Dissemination and Implementation Science Training Workshop at the 2014 HCSRN Conference. Brian Mittman, Jim Dearing, and Bridget Gaglio presented on D&I theory, research design, methods, and evaluation strategies. The workshop also included small group discussions of participants' own projects and optional one-on-one clinic sessions with experts. Over 35 attendees joined, most new to D&I science.

The C&D SWG's April group call had a communication focus and featured a presentation from Kathy Mazor on "Patient-Centered Communication During Cancer Care: Preventing Breakdowns and Mitigating Harm". To join future calls, please contact us.

Prevention & Screening

On Monday, May 14, 2014, 1-1:30 PM PT, Joann Elmore from the University of Washington, School of Medicine will be presenting on "Research Opportunities in Engaging Patients in Breast Cancer Screening Decisions and the Open-notes Project."

In addition, we will be holding our next network teleconference on Monday, June 16, 2014, 12 PM PT/1 PM MT/2PM CT/3PM ET. To participate in any of these calls, please contact us for more information.

Health Care Quality & Cost

SWG leads have been working collaboratively over the last several months to submit three PCORI LOI's. One proposal, led by Deb Ritzwoller, on "Patient out-of-pocket expenses for cancer treatment," was invited to submit a full proposal, due in the fall.

Mark Hornbrook is presenting an invited talk the SWOG Cancer Care Delivery Research Meeting in May entitled "CCDR Capacity and Historical Activity of the Kaiser Permanente NCORP Community Base". He will also present "Does the Fee-for-Service Sector Deliver More Costly Care for Prostate Cancer than the Managed Care Sector?" during the "Medicare's Payment Models: New Developments" session at AcademyHealth in June.

Also at AcademyHealth, Deb Ritzwoller will present a poster entitled "Cancer Recurrence Detection and Timing using CRN and Medicare Claims Data".

Mateo Banegas, CRN Scholar received an early career investigator award at the HCSRN conference. Mateo also has the distinction of being the first investigator from an external site to be granted direct access to an existing HCSRN-based dataset.

Gabriel Brooks, MD from Dana Farber Cancer Institute presented on "Potentially avoidable hospitalizations in cancer care" during the CRN Steering Committee Meeting on April 9.

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Additional Funding Opportunities

Application Deadline: May 20, 2014; September 23, 2014 (LOI due 30 days prior)

National Cancer Institute

Application Deadline: June 10, 2014 (LOI due 30 days prior)

National Cancer Institute

Application Deadline: June 20, 2014 (LOI due 30 days prior)

National Cancer Institute

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Two Year Post-Doctoral Fellowship Opportunity in Cancer Epidemiology

Department of Public Health Sciences
Henry Ford Hospital

The Department of Public Health Sciences within the Henry Ford Hospital (HFH) and the Josephine Ford Cancer Institute in Detroit, Michigan invites applications for a post-doctoral fellow position, available immediately, within our active research group in Prostate Cancer Epidemiology.

We seek talented and motivated candidates who plan to begin or expand their research career as a cancer epidemiologist and who wish to play a leading role on projects focused on molecular epidemiology research of patients with prostate cancer conducted within the large diverse HFH patient population.

Please see full Fellowship AnnouncementExternal Web Site Policy for more details.

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CRN Calendar

All times listed are Pacific.

A calendar of upcoming events in May and June [D]

For meeting details, contact Heather Clancy.

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